Virtual Long Covid Support Groups:
Online support Oregon, SW Washington
https://colossal-producer-8824.ck.page/36a59cc46d
Body Politic Slack Group: https://www.wearebodypolitic.com/covid-19
Facebook Covid 19 Long Hauler Advocacy Project: https://www.facebook.com/groups/c19lap
Facebook Long Covid Fighters (Prior to April 2020):
https://www.facebook.com/groups/517530815866036/?ref=share
Facebook Long Covid Fighters Round Two (After April 2020):
https://www.facebook.com/groups/650553172199572
Facebook Long Covid Support Group: https://www.facebook.com/groups/longcovid/
Facebook Young Covid Survivors (Under35):
https://www.facebook.com/groups/1324088031126789/?ref=share
Facebook Long Haul Covid Fighters Medical and Scientific Collaboration: https://www.facebook.com/groups/301843804468622/
Facebook Black Covid Survivors:
https://www.facebook.com/groups/644026989529142
Facebook ME Action Oregon: https://www.facebook.com/groups/1583366738400077
Facebook MEAction Spanish speaking group:
https://www.facebook.com/groups/185802262065563
Dysautonomia International has Subgroups including Bilingual and for LGBTQ and Spouses https://www.dysautonomiainternational.org/page.php?ID=24
Bateman Horne Center: https://batemanhornecenter.org/outreach/support-connect/
Long Covid Families: https://longcovidfamilies.org/
The Pulmonary Wellness Foundation https://pulmonarywellness.org/
Long Covid Patient Resources
Covid 19 Long Hauler Advocacy Project’s Comprehensive guide for patients:
https://docs.google.com/document/d/1VfENjAiOBKryT-dIOFyU8CyEAAKVR5xk9WyvlZF-u4M/edit
Dysautonomia International Video Library: https://vimeo.com/dysautonomia
ME Action: https://www.meaction.net/stoprestpace/
Dialogues for Neglected Illness UK: https://www.dialogues-mecfs.co.uk/films/pacing/
Dysautonomia International: http://www.dysautonomiainternational.org/
Pacing and Management Guide for ME/CFS: https://www.dialogues-mecfs.co.uk/films/pacing/
The Rest Room Podcast: http://natashalipman.com/podcast-home/
Journal Article: Humility and Acceptance : Working Within Our Limits with Long COVID and ME/CFS : https://www.jospt.org/doi/10.2519/jospt.2021.0106
An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team: https://patientresearchcovid19.com/research/report-1/
Ehlers-Danlos Society: https://www.ehlers-danlos.com/
Gez Metinger’s You-tube Channel: https://www.youtube.com/c/RUNDMC1
The Long Covid Sessions Podcast: https://www.tlcsessions.net/
How to Live with Chronic Illness Blog: https://psyche.co/guides/how-to-live-and-thrive-with-a-chronic-illness
Covid Persistente (Spanish): https://covid19persistente.wordpress.com/
Long Books & Authors on chronic illness that are Patient Resources
Sarah Ramey books: https://www.sarahmarieramey.com/
“The Invisible Kingdom” by Meghan O’Rourke: https://meghanorourke.com/
Toni Bernhard books: http://www.tonibernhard.com/
Long Covid Nervous System Calming Patient Resources
Sleepy Santosha: “Spoonie” Yoga Channel https://www.youtube.com/c/SleepySantosha
Yoga Nidra Youtube Channel: https://www.youtube.com/c/SarovaraYoga
Bilingual Yoga Nidra: https://www.youtube.com/watch?v=V-WGsGIPZ0c
Love Your Brain Yoga Meditation Resources: https://www.loveyourbrain.com/meditation-library
Long Covid Breathing Resources
Stasis: https://www.stasis.life/
Breath Your Truth: https://breatheyourtruth.com/stalled-long-covid-recovery/
Stop Fainting/Breath Yourself Better: https://stopfainting.com/breathe-yourself-better/
Johns Hopkins Bouncing Back from Covid 19: https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/coronavirus-rehabilitation/_files/impact-of-covid-patient-recovery.pdf
Johns Hopkins Coronavirus Recovery Breathing Exercises:https://www.hopkinsmedicine.org/health/conditions-and-diseases/coronavirus/coronavirus-recovery-breathing-exercises
ENO Breathing Program: https://www.eno.org/breathe/about-the-eno-breathe-programme/
Disability Resources for Patients
The Sleepy Girls Guide to Social Security: https://www.meaction.net/2017/04/17/the-sleepy-girl-guide-to-social-security-disability-u-s/
Long Covid and the Americans with Disabilities Act:
Office of Disability Employment Policy -Coronavirus Resources:
https://www.dol.gov/agencies/odep/topics/coronavirus-covid-19-long-covid
Short and Long Term Disability Resources (Kantor and Kantor): https://www.kantorlaw.net/